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The clinical, economic, and humanistic burden of Dravet syndrome - A systematic literature review.
Sullivan J, Deighton AM, Vila MC, Szabo SM, Maru B, Gofshteyn JS, James ES, Rico S, Zuberi SM. Sullivan J, et al. Epilepsy Behav. 2022 May;130:108661. doi: 10.1016/j.yebeh.2022.108661. Epub 2022 Mar 22. Epilepsy Behav. 2022. PMID: 35334258 Free article. Review.
Dravet syndrome (DS) is a developmental and epileptic encephalopathy with evolving disease course as individuals age. ...Here we synthesized published evidence on the occurrence of clinical impacts by age, the economic and humanistic (health-related quality-of-life …
Dravet syndrome (DS) is a developmental and epileptic encephalopathy with evolving disease course as individuals age. ...Here we synt …
The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research.
Jensen MP, Brunklaus A, Dorris L, Zuberi SM, Knupp KG, Galer BS, Gammaitoni AR. Jensen MP, et al. Epilepsy Behav. 2017 May;70(Pt A):104-109. doi: 10.1016/j.yebeh.2017.02.003. Epub 2017 Apr 18. Epilepsy Behav. 2017. PMID: 28431364 Review.
We reviewed the current literature with respect to the humanistic and financial burdens of Dravet Syndrome (DS) on the caregivers of children with DS, in order to (1) identify key unanswered questions or gaps in knowledge that need to be addressed and then, based on …
We reviewed the current literature with respect to the humanistic and financial burdens of Dravet Syndrome (DS) on the caregiv …
Emotional experiences of family caregivers of children with Dravet syndrome.
Domaradzki J, Walkowiak D. Domaradzki J, et al. Epilepsy Behav. 2023 May;142:109193. doi: 10.1016/j.yebeh.2023.109193. Epub 2023 Apr 5. Epilepsy Behav. 2023. PMID: 37028149 Free article.
BACKGROUND: Since the psychosocial implications of Dravet syndrome (DS) are much more serious and far-reaching than in other types of epilepsy, caring for a DS child seriously affects the entire family. ...CONCLUSIONS: As this study identified specific burden domains affec …
BACKGROUND: Since the psychosocial implications of Dravet syndrome (DS) are much more serious and far-reaching than in other types of …